Thursday, June 20, 2013

parenting greeting cards you will never see....

So, after 4 hours of shopping for dresses and shorts for my incredibly sensitive little girl, I sorta wanted some compassion.  I mean, it was bloody hell.  To be honest, I wanted some sort of recognition when I was done on how seriously awful shopping with a 4.5 year old with special needs is!  After 4 meltdowns, 4 stores, countless "no, I'm sorry we can't buy that today"s, a heartbreak over a stuffed bunny that I wouldn't buy her, several small freak outs about trying on clothes in the change room (she thought someone might see her changing) and tags/threads/pockets/appliques in places that drive her mental, and a small panic attack over a cricket loose on the floor of the pet store,  I deserve a freakin' medal!

However, I realize that medals are a bit pricey, and rather cumbersome and hard to come by, so I'd settle for just a nice card, or even an e-card, stating how much I am appreciated for the work I do...Unfortunately, on hunting for them, I find there aren't really many satisfactory sentiments out there to show appreciation for the work parents do.  So, I'm compiling a few here today.  Tell me what you think!  

or maybe one of these?
and maybe one day, we'll even be featured in the paper:



Oh well, I guess I'll just settle with a grubby-handed hug and an "I love you" from a smiley love-eyed little girl...On second thought, that's the best reward ever, isn't it?



If you have any cute/funny/sarcastic parenting-related e-cards I'd love to see them!  Message them to me on Facebook, and I may post them there, or even here!

Saturday, June 15, 2013

the perfect parent.

I read a lot. 

Not the historical fiction or murder mystery or teenage angst books of my B.C. era (Before Children), and definitely not as much or in the same way as I used to, picking up a novel and starting at the beginning and getting to the end within a day or two, but I still push my eyes across written words and try to make sense of the black and white. More than I probably should sometimes.

 These days my focus is most often Parenting blogs, Pinterest, Facebook Links, Tweets, parenting books, books on How To Be Perfect (Or Close Enough) At Everything I Do.  I've learned that I will never be *that* parent.  The parent who neatly packages each organic-raw-vegan-cut-out-to-look-like-animal-shapes-perfect lunch in non-toxic, sustainable, sourced locally or fair trade containers, the parent who has instilled the importance of charity so strongly in their child that instead of birthday presents the child wants their friends to donate funds to the "Unfortunate-Felines-With-Post-Traumatic-Stress-Disorder-From-Witnessing-Natural-Disasters-in-Third-World-Countries-Association".  I will not be the parent who NEVER yells at their children, though I do an admirable job 88% of the time, who never snaps without really listening, who is content to co-sleep until their child is 13 and can finally sleep through the night unaided.  I will not be taking my children traveling this summer to witness first hand how people in different countries live and make a living, cook their food, treat their pets...We won't be visiting Seniors Homes and volunteering our time socializing and interacting with the unfortunate seniors without visiting families of their own.  I will not have all the answers, nor will I even know all of the right probing questions to ask at all the right pivotal times...

Nor will I spend my afternoons and evenings shuttling my 2 children between piano or violin lessons, swimming lessons, riding lessons, baseball, soccer, gymnastics, education-enrichment tutoring, and tap dancing class.  My kids will not be spending their summer in a super-cool, mind-expanding, drama/sport/equine summer camp.  We will not be planning any over-the-top perfect themed garden parties with little white-bread finger sandwiches and lemonade, we will not be going on a Disney Cruise, tending our backyard free-range pet chickens (even though I reallllllly want some)....I will not be running a  waldorf-style-homeschool-based neighbourhood-kid enrichment program teaching everyone to Crochet, Knit, and Needlefelt with all-natural materials...

I will stress about my mistakes, about having chosen to vaccinate my babies, being on medication while pregnant, not having been able to breastfeed, I will feel guilty about yelling, or spending a few minutes on the computer instead of focusing 100% of my attention on my children and my household...giving them one more opportunity to form perfect memories of their perfect relationship with their perfect parents....

What we will have?  I can't say for certain in the long term, but this summer?  Walks to the park, pushes on the swing, a shoulder to support them as they attempt the monkey bars again... magic mud a la Dr. Zed... baking soda and vinegar volcanoes...Big cauldrons
of potions of rain-barrel water and anything found in the back yard, stirred with sticks and pronounced "magic" with incantations never replicable....Entire days of no structure, where the kids (poor deprived children) will have to learn how to entertain themselves with a houseful of toys, bikes, scooters, a backyard playground and trampoline...also using said toys, bikes, scooters, backyard playground and trampoline together as a family.

There will be camping with extended family, crazy long car rides, multiple games of eye spy, alphabet hunt, find a red car, find the nearest bathroom NOW!!, canoe rides, hikes in the woods, campfires, campfire songs, roasted marshmallows and smores, bike rides on dirt roads, looking for wildlife, wild blueberries and fireflies, using outhouses and not bathing for a week.  Attempts at fishing, daisy chain making, and staying up as late as possible.


 We will have puzzles and board games, kites, and our vegetable garden....eating strawberries and raspberries, apples, chives and chocolate mint right out of our yard, we will go strawberry picking, apple picking, and possibly blueberry picking again... Farmers' Market, and hopefully the Zoo....Many Many Many colouring pages, scissor crafts, sidewalk chalk and poster paint art....will go through many rolls of scotch and painters' tape, reams of paper, and bags of flour for playdough and dishsoap and water for blowing bubbles...

Discussions about heredity, mortality, immortality, puberty (eek!!), financial management, the basics of friendships, the intricacies of friendships, love, disappointment, responsibility, homework, magic, fairies, Harry Potter, our past, our future, evolution, religion, tradition, family, ability, transition, development, aerodynamics, ecology, herbology, biology, chemistry......


Shopping at the Mall, or more likely Value Village, books read, stories invented, plays and musical performances put on by two or more over-excited and under-practiced children, videos and photos taken, trips to restaurants, pizza dinners in front of a movie, running in the rain or under the sprinkler or getting wet in the local wading pool or splash pad.... burned seats on sun-roasted playground slides, sand in between our toes and in our undies after a day at the park....hide and seek, and that weird game "Grounders" that was invented either outside the community I grew up in or after my time as a child....and I'm certain I will be conned into playing pretend with them at least once or twice - being little sister, big sister, baby, puppy, horsey, or even the bus, in an extended game of make-believe for as long as I can handle it...

We will be filthy and sun-soaked, sometimes grumpy, sometimes overtired, and sometimes bored....there will be arguments between friends and siblings, and even us adults, there will be issues at bedtime, issues with cleaning up, with impatience, the wrong meals, uncomfortable socks, or even just having to wear socks in the first place....

We will accidentally go too long without a snack and our kids will get "hangry" - so hungry that they're angry, according to both my good friends in Gravenhurst, and one of my favourite blogs, Herding Cats.  We will accidentally forget the organic-non-deet-insect-repellant, or not-so-all-natural sunscreen, and kick ourselves (metaphorically, I hope) as one of us whimpers through a day of sunburn or too many itchy insect bites...We will be late for playdates, forget to wish friends and family members (at least those not on facebook) a happy birthday; will be irritated with fruit flies buzzing around the kitchen counter because we ignored the dishes for one day too many...or with moths and mosquitos in the house because a door was left open AGAIN...We will be irrationally irritated by our children getting muddy right before going somewhere, singing off-key and high pitched, missing a turn-off on the highway, or having to stop on the road to go to the bathroom AGAIN, even though we asked 5 minutes before if anyone had to "go".  There will be rainy-day disappointment, my-friend-isn't-home-and-I-am-disapointed days, and days where we are too tired to entertain another game of make-believe with our children.

 In those times, those moments where we are cross, short tempered, frustrated, irritated, or down right angry and fed-up, in those times, it will be very easy to forget all of the positives.  All of the adventures of watching a snail's foot from underneath as it ripples across a pane of glass, the sheer joy of using the pressure of a garden hose to make a HUGE mud puddle to squish between our toes...

In those times I will feel the guilt of not being *THAT parent*.  That perfect air-brushed, edited, does everything right parent who schedules and plans and organizes and is never late for anything.  And hopefully in those moments I will remember this post, look at all of the things we will do, all of the things we are, and hopefully I will step back and realize, and truly believe, that as a parent,

I AM DAMNED GREAT.




Monday, June 10, 2013

first shameless plug in a LONG time....


SO...If you hadn't already figured it out, I craft for a living.  And by living, I mean I craft stuff cuz it's awesome fun, try to sell it, and hope to make money enough to justify the crazy stash of yarn and other materials that I keep feeding into the craft room......and maybe buy groceries here and there.....

Oh.... and now I use this money to support B's therapeutic needs...purchasing supplies for therapies, etc...

I've noticed recently a distinct lack of purchasing happening on my etsy site.  This probably has a lot to do with a distinct lack of me posting new items to my etsy site....It's not that I'm not creating, in fact I've made more new products this last few months than I have in my entire "career" as a WAHM (work at home mom for those not in the know)...

The truth is, I HATE doing the photography, editing, and posting of new items on my page.  I'd LOVE to find a way to magically make this stuff happen without me.  Maybe find someone willing to work for banana bread and cookies?  Maybe advertising trade, or even products?  I'd be so thrilled with that!  But for now, I'll just show you some not-so-great pics taken with my phone...if i can figure out how to do that....grin.

Let me know what you think, okay?
made these for a chicken lover's X-mas tree...
little knitted mice - also a special request!
This special dolly traveled to New Jersey a few weeks back.


huge 55" play silks dyed with food dyes...as well as ribbons of silk for ribbon sticks...
a personalized baby blanket....
I have made a ton of different journal covers..










  
These beautiful Waldorf dollies are still looking for their
forever homes...
As you can see, I've been busy.  And there're so many more.  These girls all have shoes now, by the way....
If you were interested in adopting one of these special girls, or any other product listed here, or that strikes your fancy that you think I can pull off for you, you can contact me via email or facebook - I've set the images to open up an email to me.. Adoption fee is $199, plus shipping.  (oh, and if you think you can barter your skills as a web page developer, or photographer, you can contact me that way too).

On top of the sewing and dyeing and crocheting I've done for my shop, I've also been at the Guelph Farmer's Market - If you're anywhere near, come find me on Saturday Mornings, 7am - 12pm, at our new location for the summer - Exhibition Arena.  We'll be there until the renovations are complete on the original marketplace.  Shuttles are available for free from our original market location.

I am SO VERY EXCITED to also have been accepted as a vendor at Guelph's own Hillside Music Festival!!  I'm trying like mad to produce enough to fill a 10 x 10 booth for a whole weekend of wonder - this will be Hillside's 30th anniversary - and promises to be another fantastic year.  Check out the link for more information - I think there are a few individual day tickets left!  My girls are excited to be attending again this year, and super excited that we get to camp right behind my booth!

This has been my first post in a long time.  I'm hoping to get back on regular posting again.. I've been pretty busy producing.  Oh, and watching Netflix....It's amazing how much better the US Netflix is..So glad I finally figured out how to make that happen on my Canadian laptop and wii......Grin.

Thursday, April 11, 2013

Pinterest- the functional addiction!

So, like most web-loving people of the world, I have become a keen user of Pinterest. 
I can readily admit to being addicted.  I mean, most users of the site are happy addicts....  My love affair comes and goes in waves...and this is with intent.  See, I have made a pact with myself.  If I am going to see and love and repin all of these amazing things, I'm going to USE them!

D and baby Mokey - a year ago.
When we first were considering getting a third pet (the debate was on whether it was to be a dog or cat...eventually we got cat #3, who just happens to act like a dog and THINK he's one of the human kids), I started a pinterest page called "pets that need homes that I would LIKE to adopt".  I didn't even get to bring home a single pet from that page because they were all so cute, other folks took them home!  We ended up being given Mr Mokey Kitten via another internet vice of mine.  Facebook auction pages.  (a whole 'nother story).  ANYHOO.....total tangent....

I have dreams of things I will create one day for my home..getting depressed that small kids are keeping me from using my skills to actually achieve these things, I pacify myself with finding amazing things that I will do in my future...a couple I have started...like the live edge dining table....
homemade crayons!



The crafts for kids and recipes I've been super good about.  I average about one new Pinterest idea per month.  I've made the super-easy in a pot bread   which is awesome...and I LOVE LOVE the brownies in a mug   recipe - great emergency chocolate supply...for those times when a woman just NEEDS chocolate...we made some upcycled crayons, making tiny pieces of crayons into lovely little frogs,
Crocheted chicken set for a friend
ladybugs and butterflies..(note - if you use a microwave to melt wax, please ensure there is also a cup of water in the microwave.  This little activity cost me a microwave....groan).  I learned to cook bacon, finally, without burning it, by cooking it in water, of all things...even made these adorable chickens for a friend!  I even got the funky smell out of old
got the stink out!
dishcloths and towels using this trick!



Over Christmas this year, the girls got a 2nd hand vintage Playmobil castle for Christmas (they still believe it came from Santa - shhhh....)...After acquiring it, we discovered that some pieces were missing.  I used Pinterest to help me keep track of all of the missing parts and where I could buy them online.  Solely for my own purposes, but I found that a toy store started following that page!  

When learning about B's sensory issues, I discovered a WONDERFUL Facebook page that helped me understand her and her needs better...and they have amazing Pinterest boards, wonderfully laid out in sections and topics in a way that is completely understandable and useful - much easier access than on a single website!


If you haven't discovered Pinterest and all that is wonderful about it, I have some advice for you.  Be prepared to lose time.  Really.  The first few times I used it I was sucked in for hours.  But overall, I'd say my experience has been fantastic.  

Okay, gotta go now.  I have a bit more pinning to do before bed.

hugs.

Sunday, April 7, 2013

my daughter

our bodies,
which were once one
fit together still

your little head 
tucked perfectly against me
little fingers picking
at the softness
of my sweater

we were meant to be together
you and i
our differences more similar
our similarities more different

you mirror to me
all of my hopes and dreams
my strengths 
my weaknesses
my fears

from whence you came
you shall never fully return
but my heart
and yours
shall remain
connected

as you reach out into this world
exploring
growing
learning

in your own way
because of me
despite me
to spite me
regardless of me
learning

stumbling
more than others
perhaps
finding strength
more than others
perhaps

overcoming
all obstacles
never alone
always with my heart
connected

my strength 
connected
my happiness
connected
my love
connected
to you

little toes
pressed firmly 
against warm 
weathered flesh

little heart 
pressed firmly
against warm
weathered heart

giving
taking
connecting
loving
learning
teaching

you are

my daughter


Friday, April 5, 2013

Magic Mud. Thank-You, Dr. Zed.


 Do any of the rest of you remember Dr. Zed, and his experiments from Owl magazine?  I used to get those Scholastic Book Orders every month, for books I could buy, and help our school earn a few books as resources...Those Scholastics still come home with the kids, and Owl, and it's younger sibling Chickadee are still out there, but I haven't seen good ol' Dr. Zed in a long while...so of course, I went to the one place I KNEW I'd get some answers.  I googled it.  Not much was out there, because apparently, he has since retired from magazine fame....I did find a good pic of him in the Owl Magazine archives...
He had his own books too - I had, and still have, Dr. Zed's Dazzling Book of Science Activities.  It's out of print, these days. The ONE reason I wanted this book, the ONLY reason I wanted this book, so badly that I begged for DAYS to get it from the Scholastic orders, was the hope that it would have the recipe for the amazing and magical concoction known as Magic Mud.  Now, this was in the days pre- Pinterest, and Google, remember.  Even before the remarkable Interweb....
Much to my chagrin, it did not have the recipe, and for years after, I wondered how to make the magical stuff.  
As an adult now, I want to spare my children the misery and longing of never experiencing magic mud.  So, I have used the web, and all of the resources available to us in this amazing 21st century, and when kid #1 was old enough not to eat the stuff, she was introduced to magic mud!

Having a child with sensory issues (namely kid #2) has made experimenting with stuff like this all the more important and useful as a day-to-day tool for keeping mommy sane" as well as giving her some well needed tactile stimulation.  I'm going to share the recipe here with you now, with photos of our day yesterday, enjoying ourselves with it.

*Note - half of the enjoyment of magic mud is the MAKING of it.  If you are doing this with your kiddo, please let them help.  It will mean the world to them, and it will make it all the more a fun experience!  This WILL make a mess, be prepared for it.  But it is actually SUPER easy to clean up - it is very water soluble, and when dry vacuums up super easy.

You will need:  one large bowl or deep tray, one box of cornstarch, tap water, and some sort of colouring.  I've used Wilton cake dye, mixed into the water before adding it to the cornstarch.  Any food dye, or even juice would probably work.  Here`s B opening up the box of cornstarch.  She needed help ripping open the waxy-paper baggie inside.

 
 Step 1:  Dump cornstarch into bowl.  B is taking this very seriously.  To her, this needs to be as exact as when we are baking.  She doesn't realize that there's not really a way to do this wrong!



 

 Step 2:  B is mixing the Wilton icing dye that I put in the water.  I was smart enough not to let her put the coloured paste in herself, because I know it would have been a disaster.  That stuff stains before it is diluted, and B's self-control is, shall we say, lacking.  If you are using juice, or even regular food dye drops, your kiddo could probably enjoy adding it themselves....
 


Step 3:  Pour the coloured liquid into the cornstarch.  I used about 2.5 cups for the box of cornstarch, this is a 1 cup measuring cup in the picture, we refilled itHave towels on hand if you or your young one's aim or self control is questionable. 



 
Step 4:  Get messy!  Hands in, mix it up and play!  You will get the coolest textured goop ever.  Half liquid, half solid, both at the same time, neither...mix,  play, have FUN.  And not just your kiddo.  Get your own hands in there.  Even if you hate messy hands.  It's therapeutic.  Cathartic.


 
Pick up solid fistful of goo
Open fist - solid dryish mass turns to ooze

 The solid-liquid gooeyness of being able to pick up a solid "chunk" of the stuff, and then letting it ooze all liquidy back into the bowl is unbeatable.  Trust me.  

At this point I learned a new trick.  Put a towel under your play area.  The rationale is two-fold.  One, it makes the clean-up WAY easier.  Take towel out to yard and shake.  Wash towel.  

Two, we discovered that magic mud makes great mud pies on the towel, as the liquid is absorbed into the towel....and neat little dry-ish mud balls too.  More water was added after to the bowl to re-moisten the mud.

It is also fun to add toys - any plastic ones that can be easily rinsed off - this stuff doesn't stick permanently.  It rinses easily and cleanly away. 


This activity easily falls into my acceptable indoor project ratio of:

[Fun time]=/>[prep time]+[clean time]
where =/> means equal or greater to.
 
Have fun!



Sunday, March 31, 2013

Why don't stores sell dairy free Easter Chocolate?!!

So, in the mad dash that is life with allergies, we had to think fast this year, as our first year with a 4 year old with a Dairy Intolerance.  We thought about saying "screw it" and letting her have the chocolate for the one day, but we dreaded the horrid bum rash and tummy aches that come along with it...never mind the months after of "but you let me have the Easter Bunny Stuff?!!"

Solution?
Make our own Easter Chocolates. 

Sure...no problem.  we'll add that in to the Saturday evening schedule of get kids to bed at reasonable time, tidy house, ensure kids are good and asleep, crochet, sew, tuck child one or two back into bed quickly before they peek down to the kitchen, fill plastic Easter Eggs, hide them around the house or yard......oh, yeah, and sleep....sweet sleep, oh how I miss thee....

hard boiled coloured eggs..
At this point, I may mention that all of this Easter stuff is still relatively new to me.  I grew up Jewish, and still identify as Jewish by Culture, if not by religious belief....So I'm still sorta confused as to what a bunny poopin' out brightly coloured plastic eggs filled with chocolate have to do with the long-haired guy rising from the dead all those years ago....(I was jokingly referring to this Holiday as the celebration of the Zombie.....my partner was NOT amused....and even 8 year old D rolled her eyes at me...)

Anyhow, back to the point of the matter.  For the last 2 days B has had a fever of Near Biblical Proportions (ya see what I did there?!  huh? did ya?!!)  and has been wandering around like a Zombie (thats TWO - I'm on a ROLL), when not whimpering in misery on the couch......And we went to the big family Easter Gathering on Good Friday - a 2 hour drive to my sister-in-law's, 5 hours of enjoyment, hard boiled egg decorating, and a WONDERFUL, if not overly Kosher, Ham Dinner....We got home at half-past stupid o'clock, threw our barely-asleep progeny in bed fully clothed, and passed out for the night.  So when did we get to make these chocolates?  Right now.  Saturday night, 10:15 pm, and we're filling the pastel coloured plastic egg-shaped bunny poops with home-made, dairy free chocolate bunnies, chicks, and carrots....
the wrapping of the minis
melted dairy-free belgian chocolate...

But the thing I'm super impressed with?  Not the basic melting, pouring, and wrapping of the mini-chocolates for our brood to find tomorrow morning and devour for breakfast (one of 3 times a year this gets to happen)...But the Biggies.  The Full-sized Easter Bunny filled with peanut-butter filling,  and the HUGE half-eggs filled with home-made Marshmallow Fluff.  It's amazing what you can find on Pinterest and Google.  You never need to know how to do anything anymore!  here's the peanut butter filling we made for the big bunny.....recipe from the 2sisters2cities website, via Pinterest.....and here's the marshmallow fluff filling we used for the big half-eggs....okay, it's more of a guideline than a recipe...  I've never done these before, and was shocked by how easy they were.  The clean-up, mind you....I was happy to leave that to C....as I had a cat to bathe.....and a 4.5 year old to tuck back into bed....again....
The coolest thing about the need to create dairy-free chocolate, is that we're actually getting super yummy chocolates this year..
Moving molten chocolate around the bunny mold.

and we made them ourselves!!!  Okay, well, maybe we didn't make the chocolate part.  Bulk Barn provided those for a bit of a fee.  But you get the idea.


some of the little guys all wrapped up
marshmallow fluff filled half-eggs
Peanut butter filling.  yummier than Reese's
i
The bunny brought by The Bunny - all full of peanutty goodness!!!

In the end, I have to admit it was fun...but next year we may have to search harder for a dairy free pre-made set up.  I was too paranoid that the kids would wake up and discover who the REAL Easter Bunny is!

I'm so not looking forward to figuring out Hallowe'en.......

Thursday, March 28, 2013

Thank GOD I'm CrAzY!!!?!

So there's something to be said about being a little loopy.  Whether or not the loopy came before the kids is a debate for another day, but it's a useful tool in the day to day world of parenting, let me tell you... 
here's my favourite parenting tool, The Voices In My Head
These are perfect for maintaining an exterior of calm, while inwardly screaming at kid top volume.  As we see in this dialogue:


Outside Voice, the one the kid hears - "Did you just turn on my sewing machine again?"

kid - "yup"

Inside Voice, the one screaming in my head - "G-D kid.....how many TIMES do I have to tell you to leave my REALLYEXPENSIVEMACHINE ALONE!!!"

Outside Voice- "You know I don't think it is safe for you to play with my sewing machine without me, right?"

kid - "Yup.."

Inside Voice- "GRRRRRRR..."

Outside Voice- "What made you think it was a good idea to use my machine without me?"

kid - "cuz I wanted to....."

Inside Voice- "OMG if I did everything I fricken' wanted to just cuz I wanted to....and you should KNOW BETTER, I ONLY TOLD YOU THIS 3 FRICKEN" MINUTES AGO!!!!!"

Outside Voice- "I love that you have good ideas in your head that you want to explore.  I love that you wanted to make something all-by-yourself..I just don't like that you aren't listening when I'm trying to keep you safe, so now we have to leave the sewing room, and we can't finish the project that we were working on together."

kid - "YELL, SCREAM, WHINE, SHOUT, COMPLAIN, PROTEST.....!!!!!!!!!!"

Inside Voice- "OMG, IF I HAVE TO LISTEN TO THIS ALL DAY I MAY GO POSTAL...CUT THIS OUT THIS INSTANT!!!"

Outside Voice- "I hear that you are upset by this change in events....but it isn't safe to have a person who is having troubles listening in the sewing room - we could get hurt, so out we go..."

kid -"I love you mommy, we will sew later?!"

Inside Voice- "Not if I have anything to say about it, that's MY sanctuary, and you will stay the hell away!"

Outside Voice- "We will discuss that later after your bath."

.................etc etc.....ad nauseum.......
"Completely convinced that each white hair is one inside voice dialogue leaking out my skull...."

Saturday, March 23, 2013

Here's my letter to my local MPP...I mentioned I'd post it...



So here it is, in all it's glory.... I am leaving out names, just to be fair... I realize it may be hard to follow, and I'm sorry about that.  I am leaving it as is, just because I don't have the energy to change it right now.  but feel free to ask questions, make positive suggestions in the comments section....
thanks



Thank you for speaking to me on the phone yesterday about my daughter.  Just to recap, we were talking about the failure of the early intervention mental health system in Guelph to support my daughter, B, in receiving the help she needs in the evaluation, assessment, and treatment of her Sensory Processing Disorder.  We started to look for intervention for B when she was less than 2 years old, as her behaviours and coping mechanisms did not seem to fit with the "norm" for her age.  We started by calling the Growing Great Kids Program - run by public health - and had E assigned to us as our public health nurse.  She made 2 visits and received 3 of my phone calls over an 18 month-ish period, but did not recommend or initiate any sort of screening or assessment for her, despite her witnessing a few extreme behaviours.  She stated that B was Highly Spirited, and that made her intense, but she was "normal".  At about 3 years old I started advocating for speech therapy for B, as at the time she had some language barriers for her age, as well as difficulties in pronouncing certain sounds in her mouth.  We were referred, at my insistance, and the recommendation of E, to Wee talk, assessed after over 3 months of waiting, and sent home with a "home program"  to help me teach her to do her "L" sound (something that wasn't an issue yet due to her age).  Despite me insisting that she would not benefit from a home program, and despite E's recommendation to speech therapy with a therapist rather than at home, that was the assignment, and we tried to follow the program at home.  As expected, this was unsuccessful, as her frustrations led her to rip up colouring and other "assignments", and otherwise react negatively to attempts to "train" her to pronounce a letter that she was not developmentally ready for.  In this time we saw E again, and I had at least one very frustrated and desperate phone conversation - where E agreed that it seemed that B may have issues with Self-Regulation, but still, she didn't have an assessment done or scheduled.  She discussed at this point the city's Early years mental health program, and put us on the waiting list for that.  I asked if there were any programs/support for parents dealing with similar issues, and she recommended me waiting until B had been assessed at the early years mental health program, and then asking for support through B's worker.  She insisted that it would be the fastest way for me to get the support I needed. Three months later we went to her follow up wee talk appointment, and explained her lack of progress and frustration with the program.  We were then referred, by K at Wee Talk, to a speech therapist at St. Joe's, and waited 3 more months to see her.  Within ONE visit with M at Wee Talk, it was determined by the speech therapist that B was in desperate need of Occupational Therapy, and M made the referral within 1 week.  B was not yet 4 at this time.  It was also determined that B's speech issues were not something that could be treated with speech therapy at this time, as the problem was the physical formation of her palate, which would not be corrected until she was much older, either naturally or with orthodontic/surgical assistance.  We were then told by M that the waiting list for OT through Kidsability was very long, and should we want service sooner, we should pay for private OT assessment through a local private clinic here in Guelph. 
Concurrently, we began assessment/treatment with early mental health program, seeing E.  The written evaluation/assessment showed that she was medium/high risk in her behaviours, no discussion as to the root cause of these behaviours, and after 2 sessions spanning 3 weeks, we were told that we qualified for their services.  We attended 4 sessions with E, where she focused on my interactions with B, and behavioural modification techniques (such as visual reminders of how to behave, games to play to help us express and recognize emotions).  B found the activities fun, but they were not very beneficial to our situation, as we had already been implementing more effective techniques in our home for managing those behaviours. Seeing little benefit to this treatment, we finally decided to follow the advice of the speech therapist and seek private OT assessment, as it was now November 2012, and B was already 4 years old. We paid $200 to have an assessment done by N, the private OT.  It was determined that there were several sensory impairments, as well as self-regulation issues as a result of Sensory Processing Disorder.  A copy of that assessment can be provided at your request.  It was determined that much more assessment was necessary to fully understand the depth of her issues, but as they saw that we were instinctively adept at providing a lot of the care she needed, and as they were aware of our financial limitations, they instead recommended a series of books related to sensory processing disorder, and advised us to create a "sensory diet" for her based on the books - this is a practice usually put into play by an Occupational Therapist, but they didn't offer us this service, as we were limited financially, and weren't sure if we could continue paying the $125 per hour to receive treatment and support from them.  At this time, dealing with my daughters' disorder, a system that wasn't helping, and just needing support, I asked E at the early mental health clinic, over the phone, if there was any sort of parent support group - to help me cope with dealing with the day to day of our existence and B's disorder's impact on me and my family.  E signed me up for her workshop "circle of security", which while interesting, did not in any way address my issues, or meet the needs I requested.  I called her after the first week of this program to set up my next appointment with her and my daughter, and she told me that she didn't need to see us while I was doing the circle of security program, thereby ending ANY treatment that B was receiving.  The circle of security group happened to have two sessions that fell over March Break, and we were away for those two weeks and the week before that, after a whole night awake with B, I had missed 3 sessions of the group.  I recognized that I could not finish the group as I had missed too many, and asked about rescheduling the private sessions with her and B, mostly to maintain some continuity in care for her.  At this point E stated that I had reached the max of her services, and it was time for me to put our sessions into practice, and she would call me in May (this after B had seen her all of FOUR TIMES).

While doing our homework and reading every book we were recommended by the OT, we were also weighing our options at this point (borrow more money for therapy or continue to wait for publicly funded OT program). At this point we got a call from the publicly funded OT, stating we had an appointment scheduled for that month (in January).  We decided to go with that, and informed N, the private Occupational Therapist of that choice.  Within a week of our coming appointment, the public OT service called to state that our assigned OT was no longer available to provide services to us, and we would have to wait until at least March for service.  More waiting.


  We FINALLY received our initial assessment last Thursday, March 14.  B is now 4.5 years old.  The OT that conducted the assessment was D - very wonderful woman, who B instantly bonded with.  She conducted her assessment, offered some basic suggestions about making us a visual schedule for B to learn to follow, and offering to make the recommendation that B be followed by a pediatrician, but warned us that B was getting to the top end of the age in which they provide Occupational Therapy, since their restructuring (while we were waiting for our rescheduled appointment).  That same evening, while we were away for the last weekend of March Break, we got a message on our phone stating that B did not qualify for Occupational therapy, due to her starting Senior Kindergarten in September (despite the program's mandate up to this point of early intervention to age SIX, and her only being 4.5 at this point).  When I called D on our return from our weekend, we discussed the situation, and she agreed that B would definitely benefit from Occupational therapy, and the only reason that she did not qualify was her entering Senior kindergarten in September, and the further waiting list that she would have to be on to receive OT would put her past their cut-off period of June.  We at this point signed up for their 2 day USWAY seminar (Understanding the Sensory World Around You), in the hopes of getting some sort of support still, through D.  She agreed that the information provided would be information that we already knew, but we hoped to at least meet some other parents whose children were also affected by SPD, and maybe receive some support that way.  She also gave me her supervisor's phone number, M-E, and told me that I could talk to her for further assistance.  M-E reiterated that we did not meet their qualifications for receiving OT, because of her age, and then stated that she should have been referred for assessment back when she was 18 months old, and E the public health nurse, should have asked for the assessment/made the referral to Kidsability back 3 years previously.  She agreed that we were one of the families that unfortunately "fell through the cracks" in the system.

I talked to you, at the M.P.P. office, at this point, and asked for my M.P.P.s support in helping my 4.5 year old girl get the therapy she needs to function to her best ability.



I offered to send you some links to help you understand the disorder she was diagnosed with.  Here they are.


http://sensoryprocessing.yolasite.com/
http://stavishclan.com/2012/10/guest-post-sensory-processing-disorder.html
http://www.spdfoundation.net/


While all of this waiting and waiting and beaurocracy has gone on, my child, and my family, are still struggling.  Bis not getting the support/therapy she needs.  This is not right.  We as a family followed all of the right avenues, started as early in our childs' life as possible to receive the support she needs.  We are lucky to understand the system, and have tried to stay within it to the best of our ability.  Please help me make it right for my little girl.  

Thank you.